I feel like one thing that has been missing from my discussion of diets in the last few months of experimentation is my personal story with food. In fact, you should subscribe to the AdventureRx Podcast because that is going to be the next story I am going to tell in episode 28! There is a reason that I arrived at a place with my diabetes where I feel comfortable going to “extremes” and it didn’t happen over night or because someone berated me into doing it. It all came from a desire to be able to climb more confidently. I don’t necessarily mean climb “harder” because I am not the best climber out there by a long way. I mean being able to place less focus on my blood sugar and more focus on my climbing.
The vertical world has always been a drop-test for my diabetes and it has taught me much of what I know. Conversely, when people ask ‘how do you treat lows on a climb?’ or ‘don’t you worry about going low?’ my response always goes back to what I have learned about eating. In short, when I need to focus on something beyond my diabetes, food is my first tool to implement that fix.
I have always eaten a diet that’s relatively low in carbs. To me that was just “eating food” until about two years ago when I started to hear terms like “Paleo” and “Keto” floating around. Honestly, when I was diagnosed with diabetes I realized early on that the greatest limitation I was facing came from blood glucose variability. I think that this is true for many others as well-eating the same things from one day to the next but not knowing how blood sugar will respond is frustrating and in some cases frightening. At 16 years old I decided that I would eat foods that required the least amount of insulin possible-because more insulin on board generally meant greater chaos in my experience.
I didn’t make that decision from reading a blog-or writing one. I didn’t get to that conclusion from a YouTube video. That was 1999 and there was barely email back then. I noticed what did and did not make me feel good and which foods always required correction after eating. Honestly it wasn’t hard for me to cut out the heavy carbs since I was able to fill up on proteins and fats and low carb vegetables. It was a dietary shift-but not a sacrifice from my standpoint. I can’t say that a dietary transition like what I am about to describe would be as easy for someone who had a sweet tooth or couldn’t live without pasta. I grew up on meat and cheese and fish and vegetables so it felt less traumatic to restrict carbs.
After living with type 1 for a few years I began accepting the label of “Low Carb”-I remember my college roomates commenting on the lack of nutritional balance on my food tray when I’d be at the dining hall. I got pretty decent control (mid-low 6s A1C but with at least one high over 200 and at least one low in the 60s each week) I figured, ‘That’s all there is-this is as good as it gets’. I basically stopped looking for new approaches until 2010 when I was working as a rock climbing and canyoneering guide in Utah. Being in a community of people who were very in tune with “clean eating” while working a job with significant daily energy demands made this a perfect time to try new strategies.
I decided to try a raw vegan diet which definitely had a lot of benefits in terms of energy but it required a lot more in terms of food volume. If I was out climbing or hiking, that was no problem because I could eat relatively low-carb vegan meals without additional insulin. The tricky part was breakfast-before I’d head out to adventure-my sugar would regularly be in the 200’s because I needed more carbs for energy but couldn’t afford to take too much insulin up front, knowing full-well that I would plummet once I started hiking.
Over all, I felt that the benefits outweighed the costs and that highs in the mornings would just have to be a price I paid. I hoped that my other efforts to be fit and healthy would somehow make up for any shortcomings in my blood sugar control. Once I stopped guiding, I was able to set my own schedule again and I found that smaller carbs over a longer period worked better on my blood sugar and that ultimately there was no substitute for feeling full after a meal. The foods that I could always safely fill up on? Meat, cheese, fish, eggs…and so I decided to go back to a generally low carb diet. This is how I ate until this past summer when I finally got fed up with the lack of energy that I felt on this type of diet.
I had made the mistake of thinking that I was on a Ketogenic diet in this blog post and so I renounced that way of eating and decided to re-approach the vegan diet. You can read about how it worked and how I struggled with it and ultimately returned to the old reliable low carb diet.
Here’s the thing though; I had been on a low-carb diet for years but never on a Ketogenic diet. Our bodies basically have two options for fuel: fat or glucose. A low carb diet that cuts the glucose without actually shifting the energy source fails to address the bigger issue-and this is seen very clearly in the “failure” and lack of energy that I had felt when I really pushed my body. I was low-carb enough to help lower my blood sugar but there was nothing there to replace glucose as a fuel source.
I feel that it’s fair to point out that I am not a researcher or a scientist. I know there has been a lot of scholarly debate about what diet is best and which macronutrients are worst. If that invalidates my experience in your eyes, then that is perfectly reasonable-I only share to encourage other in experimenting for themselves. Having said that, I know that about 90% of the things my endocrinologist used to tell me-were right out of the textbook but I rejected them because I knew what worked for me based on performance, experience and blood sugar averages. In other words, I prefer to do what works based on my own experience-especially when that experience paints a very clear picture.
Recently my experience has shown that a Ketogenic diet suits my needs very well. I have energy in abundance, blood sugar stability that I have never before experienced (even during exercise) and I don’t feel hungry throughout the day. So what changed? How is this any different than before?
Fat. More fat. I started replacing the carbs in my diet with fat and moderate protein and you can read exactly what I eat here. Looking back, I had always thought that protein was the obvious to replace carbs. Once I began increasing coconut oil and macadamia nuts as part of my diet I began to feel the shift in energy levels that come with entering a state of ketosis-where your body effectively adapts to burning fat as its primary fuel source-not sugar. In order for that adaptation to occur, it can take up to two weeks of eating less than 50 (ideally under 30) grams of carbs in a day and replacing the majority of those calories with fat.
A Ketogenic dietary approach may be largely untested in the long term. It is certainly not as simple as a single blog post from an enthusiastic self-experimenter might make it seem. Here is what I do know. I know my body fat is down. I know my blood sugars are lower overall. I know my blood glucose is stable enough that I can go for a 3 mile run (starting at about 130 mg/dl) without having to eat anything to correct a low. I know that I feel energetic and my head feels clear. I also know that I’d be missing out on these benefits if I didn’t take the initiative to try a lot of different things and invest the time in figuring out how my body runs best through a lot of trial and error!
LivingVertical thrives because of YOU. I (Steve) personally appreciate the fact that you are part of our growing community of active and adventurous people with diabetes. I will be offering diabetes coaching services beginning October 1st-and I have space for 5 people who are looking to improve their lifestyle, diabetes control, goal setting and adapt their management to unique, active pursuits. Email me for more info [email protected]!
Thank you so much for sharing your experience going Keto as a Type 1. I am low-carb right now, and am considering experimenting with full Keto as I transition from glimepiride to insulin (I’m still “honeymooning”, but want to give my pancreas a break from artificial stimulation).
Please keep the info coming! 🙂
Thank you!
Great post, Steve! Your nutrition posts are helping to guide me in my transition from a vegan diet-which at times became pretty carb heavy- to an all or nothing ketogenic diet. I only started two days ago, but I am already seeing stabler blood sugars, and I’m REALLY liking it. I’m also going to do a side by side, one month CGM comparison. In addition, I’ve been documenting my meals with an app called Meal Memory-it’s great to gauge BS before a meal and two hours post prandial.
Jesse this makes me incredibly happy!!
So glad I found your blog! As a relatively active, outdoors loving type I diabetic who is also into nutrition and understanding peak performance… I’ve been looking for well-informed type I diabetics to learn from. I’ve been curious about ketogenic diets and a little afraid (though that may just be my sweet tooth talking-you know like an ego that’s afraid of being left behind when one gets enlightened and demands you don’t meditate too much!).
I’m curious how you administer your insulin and how much your insulin needs decreased when you moved to the ketogenic diet? It sounds like it may not have dropped as much as mine would since you’ve been on low carb diets for a long time. I’ve been on a fairly classic diabetes diet that includes plenty of carbs (60/meal). Thanks again for writing this!
Thank you! I appreciate that comment-I have found that my insulin levels dropped initially by about 40% and then after a month or so they increased slightly, with a net reduction in my insulin dose of about 25%. I would say that my insulin sensitivity increased a little bit but not dramatically-in terms of how rapidly my body responds to insulin. Your mileage, will certainly vary, but those were my results and I have heard from a lot of other type 1s who indicated similar results.
As far as insulin delivery I have been on MDI for my entire 16 (almost 17 years). I know of plenty of people who do a successful keto diet on a pump, but I prefer the balance of two separate types of insulin.
Impressive response time Steve! And very helpful to boot. thank you.
I have another question, did you or did you consider monitoring your ketones. It seems like they would likely be no problem at first and for quite awhile, but I wondered if the ketones might build up. I have to say that I used to keep ketone strips around, but never used them and so haven’t for probably the last 15 years. I’ve had diabetes for almost 20 years. For all I know there are new and more accurate ways of measuring one’s ketones.
And lastly, related to the ketone diet, I noted your comments about having to work at keeping up electrolytes while in ketosis. Do you happen to have some references on this — I’m always curious as to the why’s. It helps me stay committed when I understand why I should do something.
Thanks again!
Happy I could help. I try to respond ASAP to comments…because it’s not too often that I get them!
So as far as monitoring Ketones and the risk of buildup-dietary ketosis will generate low levels of blood ketones. DKA is dangerous due to the acidosis caused from the BUILDUP of ketones-so the acidity is the danger not the ketones. In a similar manner, sugar in the blood is not dangerous but it CAN be if it’s way too high.
DKA occurs around 20mmol and a low carb diet will typically not get you over 3mmol unless you fast for extended periods. This is my understanding/opinion based on what I’ve read. In fact it takes a lot of commitment to get over 1.5mmol for most people (strictly through diet). Given the cost of a blood ketone meter and this information, I haven’t bothered to measure my ketones. Without eating carbs (no more than 30-40g per day since July) I know that I am in light ketosis at the very least and when I feel the “keto-clarity” hit, I know that I am in a bit deeper (higher levels of ketones). So long as I am not experiencing extended high BGs, I don’t worry about those dietary ketones placing me dangerously closer to DKA. I do keep that much closer of an eye on my BGs when something feels “off” and make sure to hydrate more-the good news is that a)I haven’t had high BGs for extended periods while on this diet-except for when my insulin crapped the bed, and it made my decision to open a new vial that much easier! B) I don’t usually experience high BGs with sickness-or my immune system has been exceptionally strong (or lucky?) for the last 17 years!
Ok…so in terms of electrolyte replacement, in short, eating carbs causes your body to retain water-so when the carbs go away, your body stops holding water. You pee more and in larger volumes. In a similar way that an athlete on a hot day will require salt tabs to keep their electrolytes in balance, a person on a keto diet needs to compensate with fluids and electrolytes. When I am dehydrated or depleted, I feel noticeably fatigued. I drink so electrolyte mix and usually within 30 minutes I feel way better. I struggle with keeping my intake where it needs to be.
I HIGHLY recommend checking out this link: https://www.reddit.com/r/keto/wiki/faq
Their FAQ is superb and thorough. There are links for days in there and being honest, that is where I got most of my reading/info and that is where I send folks who ask questions because I have only one perspective and reddit has MANY people who are thriving on that diet.
r/diabetes has many diabetic folks who are using keto and can help fill in the gaps of info on the diet that are specific to us with no endogenous insulin!
A couple of words of caution that I think are really important to remember: People on reddit are very anonymous, much more-so than other social media sites and are frequently really…rude. Not always but there are trolls there, so don’t take any guff too seriously.
The keto diet has been great for me. I dont know that I will stay on it indefinitely, but for now, it’s been really good. Experimentation is the only way to find what works for you and I encourage people to try keto because if it doesn’t work, it’s useful to eliminate that option-and if it does work for you, then it can give you a freedom from much of the instability of blood sugar-fear of highs and lows. It has been almost magical for me.
Other people do not have that experience. I’ve seen people who follow keto to the letter and it doesn’t agree with them-they feel awful-and that means a lot. Lastly-in order to get good results or bad results sufficient to rule the keto diet out, you really have to go all in. I think that’s true with other diets too, like a vegan diet which has its merits as well.
Keep me posted with your progress!