I recently began writing about the ketogenic diet and type 1 diabetes in an attempt to optimize my blood sugar in relationship to athletic performance. This podcast episode can provide some additional perspective about how I arrived at the ketogenic diet for type 1 diabetes. It started with a low-fat plant-based diet and I have recently changed my approach (dramatically) to a Ketogenic diet (low-carb, high-fat). The results have been remarkable and I feel like this dietary approach is a worthwhile consideration for anyone who is in a position to optimize their diabetes management-or who just wants better energy with no “crashes” throughout the day.
In case my standpoint isn’t obvious, let me clarify, there is no should or shouldn’t implied in my writing about this or any other diet. Some people eat pizza. Some people drink diet soda. Some never consume either-or do but always feel guilty. Still others know the drawbacks and act in moderation and feel great about it. My goal is to inform those who are interested in trying something new or just knowing what else is out there-not to persuade those who are happy with an already satisfactory approach.
In my last blog I focused on the comparative results between the two diets, and this blog will hopefully answer the one major question I got-‘what do you eat on a daily basis?’
Not all low-carb diets are Ketogenic, but the Ketogenic diet is low-carb. In the coming weeks I will be sharing more about how my transition to this diet came together as well as mistakes I made along the way. I will also probably put up a post along the lines of “What is a Ketogenic diet?” although that is lower priority for me to write about because the answer to that question is readily available through any google search.
I am including the following video from Dr Peter Attia because if you are interested in the science behind this diet or are of the impression that this is a “fad” diet, it’s useful to see that there is more driving this approach than internet marketing and expensive diet plans. In fact, if you read “Good Calories, Bad Calories” by Gary Taubes who does extensive historical research on dietary trends, research and corresponding guidelines, you will be surprised (as I was!) to learn that various forms of carb restricted diets were known to be effective as far back as the 19th century.
But I digress…
The Ketogenic diet emphasizes replacing carbs with fat not protein. Some of the reasoning behind this is elucidated in the above video, but in order to switch the body to burning fat in stead of sugar, it is important to increase clean sources of dietary fat in the near absence of carbs. There is a lot of experimentation surrounding which sources of fat are the best and one doesn’t need to look far to see internet memes of bacon and butter which have risen to greater popularity in a diet that doesn’t inherently seek to restrict them. Personally I am hesitant to go out of my way to increase animal fat unless I know that it’s grass-fed and organic and minimally processed.
Initially the idea of eating fat with intent seemed like dietary blasphemy. I fully expected some unseen hand to smite me into dust and so I started out timidly. Once I embraced the fats however, I found the blood sugar stabilized, the energy went up and my portion size (and frequency-and hunger) went way down. In short I am eating less and feeling more full for longer. There has been a lot written about how the Ketogenic diet actually enhances mental clarity and while I can’t prove a direct correlation, I will say that I feel like my brain is supercharged and my thought process has much greater clarity when I am in Ketosis (not to be confused with DKA or Diabetic Ketoacidosis which is dangerous and not at all the same-I will include more on this in a later blog.)
My staple foods on the Ketogenic diet:
- Coconut oil- I add to just about every dish where possible, even to tea and coffee
- Coconut cream- I just started using this in coffee instead of dairy. More fat and it tastes amazing!
- Macadamia nuts- I like these off of Amazon, they are the single food item I eat the most of on a daily basis.
- Olive oil- due to the low heat tolerance I avoid frying hot things with Olive oil; I’ll add it to plated dishes and salads.
- Almonds/Almond butter
- Eggs- Usually 2-4 eggs per day, often hard boiled
- Meat Salad/Antipasto- go to your grocery store. Ask for “meat and cheese ends” at the deli. They usually throw away these “scraps”. I dice them up with olive oil, salt and pepper, olives and a little bit of balsamic vinegar (and sometimes tomato and onion).
- Olives
- Dill pickles
- Beef broth
- *Cheese- I actually severely cut back on dairy after I noticed how much better my joints felt when I eliminated it. Your results may vary. I still eat a little because I LOVE CHEESE…but I have to be judicious.
- Butter- usually a little bit in soups or on eggs.
- Kale- in soups, salads and fried up with eggs in the morning.
- Mushrooms- same as with Kale.
- Onions- see above.
- Bacon- I don’t OD on bacon. I like a couple strips if I am making eggs but that’s about it.
- Sausage- Same as with bacon.
- Chicken- since chicken is usually pretty lean, I will eat a bit for protein but not more than a couple times a week.
- Fish- once or twice weekly
- Steak- so far once a week or less.
I know that everyone may have different tastes or food preferences. Eating this way I am able to get enough fat to drop into Ketosis and stay there. One of the reasons that I haven’t eaten a lot of meat is because I have less interest in taking the time to prepare it and I am not usually hungry enough to eat more than a small portion. I have not intentionally tried to shift towards plant-based fat sources but those have proven to be the easiest to access and prepare-and the most cost-effective.
If you are wondering what my “macros” are-I will tell you that I have no idea. I eat when I am hungry and I stop when I feel full enough. I don’t count carbs because I eat no “dedicated carbs”-sure there are incidental carbs in Kale and Spinach and Almond butter and Macadamia nuts, but for one or two units of insulin I can eat as much as I want. There is probably some benefit to counting all of this stuff up, but that’s a time and energy commitment that I am not in a position to make right now.
Lastly, I wanted to include a recipe that I have been really stoked on because it’s super simple but it tastes great and helps me get greens, fats and electrolytes all in one shot!
- Vegetable or beef broth
- Mushrooms sliced up
- Onions if you’d like
- Meat (can be chopped ham, bacon or no meat if you prefer)
- Kale and/or Spinach
- Butter
- Coconut oil
- Olive oil
- Shredded cheese (parmesan works well)

Throw it in a small pot, let it come to a boil and simmer until everything looks pretty cooked up. Yeah, I know I’m not a chef. That’s the beauty of it-super simple but it’s really filling and you can add more “fixins” to it as you like. It takes about 10 minutes to prepare and it helps replace electrolytes which is super important on this diet because an absence of dietary carbohydrate acts as a diuretic and if you don’t take steps to replace fluids and minerals you could wind up feeling poorly-but that is a topic for next week when I write about 5 mistakes I made with the Keto diet-and how you can avoid them.


I also stumbled into this diet choice a few years ago and have zero regrets. I am so much healthier and no longer feel hungry all the time. I often wonder why they continue to teach the old ADA diet plans. Any insight on whether this nutrition approach is being taught instead anywhere? Even as an option?
Thank you for reading this and for taking the time to comment! I think your question is super interesting. There are some who might disagree with my answer but I believe that it boils down to dollars and cents. If a patient dies of complications from high BGs there are no grounds for a lawsuit because “complications” are seen as part of the disease-indeed they are expected to occur. If a patient dies from hypoglycemia there is greater risk of lawsuit. There are other factors and it’s hard to say conclusively why such an obvious way of eating has not gained more traction (especially in relationship to diabetes). I believe that a large part of the answer is that the “establishment” has promoted a carb heavy diet and if they were to back off their position they would lose their authority. Until the research gets done to conclusively prove that it’s effective in the short term and sustainable in the long term, groups like the ADA will keep it at arms length despite the results from the community. The good news is that more doctors are getting the message-that’s partly where I got my inspiration to try it. But if you want to get this approach taught in the mainstream, it’s not there…yet.
Hi, I’m so glad to have come across this post! I was on a ketogenic eating plan for about 3 months through which I was consistently in nutritional ketosis. I decided to have a ‘carb up’ day or two and suffice it to say my life has not been the same since. On day 2 off plan I noticed my vision had gotten blurry..long story short I was diagnosed with type 1 and at the time of my vision problems my bg was 34 mmol. This all happened 2 months ago and now I’m on insulin and not eating keto. I know nutritional ketosis is not the same as DKA, so is it safe for me to go back to my ketogenic way of eating and put myself in ketosis? I can’t seem to get a straight answer to this question but your post seems to give the green light to it.
Hi! Thanks for the comment-I’m not sure I fully understand your situation enough to tell you what is objectively safe. If you have eaten a ketogenic diet in the past and it has been a good experience, being diagnosed with type 1 should not change the possibility of that same result moving forward-provided you take the time to dial in the change and test frequently. Nutritional ketosis will not put you into DKA on its own. Well controlled blood sugar is the surest defense against DKA, and for me, a ketogenic diet has given me the best blood sugar control I’ve had in 16 years. Gradual change is key when trying a new diet, as well as careful record-keeping and frequent testing. Measure the way you feel against that data, and you will have your answer for yourself 🙂
Maheen
I am a T1 diabetic for about 24 years now. I read diabetes solution by Richard K Bernstein and transitioned to a very low carb ketogenic diet. Please read the book to understand all aspects of food, medication, exercise and their impact on BG. At no point you should cut down on your basal insulin being T1D. You will bolus for the small fraction of carbs and the portion of protein. Fat is a freebie so no bolus for fats. Your food will be centered around fats and protein with carbs primarily from green vegetables. take care
I have just read your post and so glad to hear from someone using an insulin pump. I too read Diabetic Solutions and altered my diet about three weeks ago. My sugars are finally under control for the first time in 10 years.
Steve, I am wondering what your typical BG’s are when you are in ketosis. I am Type I and getting ready to switch over to a ketogenic diet and know my BG’s will be lower and insulin needs significantly less. I am curious. Thank you for your blog!
Hi Mary! My typical BGs are between 90-130. Highs still happen but rarely go over 180. The additional fat makes it a slower correction process which can be good and bad-at least it has stopped the correction-crater effect! Let us know how it goes!
Hi Steve! I’m a type 1 on and off low carb and keto for years. I was diagnosed at 25 in 1998 and honeymooned over a year because of going on Bernstein’s diet (essentially keto) way back then. I am so happy to have found your blog and look forward to your posts. I have started training for kettlebell sport this year and am soon competing in my first meet. I find it challenging when people question keto and sports and training/lifting. Anyway, thank you for your blog and keep writing! It’s so great to feel connected to other type 1’s eating this way.
Steve - this is the first I’ve come across your blog and I am extremely grateful because I have been a Type 1 diabetic since the age of 8 (43 now). Over the last year I’ve put on some serious wait. I’m only 5’7″ and currently weigh 205. I’ve heard great things about nutritional ketosis and the many benefits. However being Type 1 diabetic I am always told I cannot do a Ketogenic eating plan because I’ll get DKA. So my question is this: here’s the setup - I have an insulin pump (been on it for 16 years) I have a CGM (Continous Glucose Monitor). If I drink plenty of water throughout the day (to avoid dehydration), ensure I maintain BGs between 110-140 (those have proven best for me) and even pick up Keto sticks to keep an eye on ketones levels - do you consider that a wise step in achieving nutritional ketosis? I of course understand you are neither a doctor nor offering medical advice over that of a physician- so I of course, in writing state I am just asking for your opinion and thoughts, and that I am not seeking your advice over medical. The lawsuit crazy world we live in I wanted to make sure you understood that so you’re open to speak freely. Thanks again for posting and will track down your follow-up blogs on this subject!
Hi Ric, that plan sounds good from what I know-I’d make sure to get a good sugar free electrolyte drink because fluids replacement also leeches the minerals. Not getting electrolytes replaced can make you feel really poorly! The other big mistake that’s commonly made is eating too much protein. Fat, fat, fat!
Can I make your recipe with chicken broth
Yes! I use chicken all the time!
Ric, I feel the need to explain the difference between Ketosis, and Ketoacidosis.
Ketosis happens when your body burns fats instead of glucose, and would require a baseline insulin amount (basal).
Ketoacidosis (DKA) occurs when there is NO insulin in the blood and your body starts to burn fats in place of insulin.
They are far different, but any diabetes educator is going to tell you different. I would suggest trying to find a chronic care nurse who follows Keto to help you out! 🙂
Type 1 for 20 years, and on a pump.
Thanks Shannon, that is a great (and really simple, which is that much better!) explanation!
> Ketoacidosis (DKA) occurs when there is NO insulin in the blood and your body starts to burn fats in place of insulin.
That’s not correct.
DKA occurs because without insulin, there’s no negative feedback loop to prevent the blood from becoming too acidic.
Thanks for that clarification Anthony! This is an ongoing area of study!
Meaning what Anthony?
Is ketogenic diet only safe in the presence of some form of insulin? Safe for Type I but will always be dependent on some form of insulin?0
Trying to figure out the best route for someone who was just recently diagnosed a Type 1 and currently honeymooning. Looking for the best long term results.
Robert, while I can’t speak to what Anthony believes in terms of this diet, I think that ALL diets are only safe in the presence of insulin. Keto included. As long as your body is a reliable source then you may not have to supplement exogenous insulin, but there is still insulin in the mix. Insulin is what keeps the acidification at bay. The question that is often misunderstood is whether ketosis is tantamount to ketoacidosis and in short, the lack of insulin in the equation is the difference between the two-and as long as you have sufficient insulin on board, ketosis is not and will not devolve into ketoacidosis. Furthermore a high carb diet is bound by this principle as well-if you take the insulin out of it, ketoacidosis will surely follow within a short time. This is my understanding of a highly complex process. I think that while a full on Keto diet can have some benefits, it may be easier to start with a gradual adaptation to lower carb eating before going full-bore into keto. I think that would build some flexibility within a healthy dietary structure that would set you up for success in the long term.
As a Type 1 were always going to need a basil amount of insulin. With the keto out bolus is greatly diminished, hoewever, we’re always going to be in a long acting (I take lantis) insulin.
What happens if you’re in ketosis and for unforeseen circumstances you are not on insulin? An example would be a poor infusion set on insulin pump over night. Would a diabetic go into DKA faster during ketosis? Another thought I had, is while pregnant, my CDE makes it clear that eating too few carbs puts me at a higher risk of DKA because the body responds differently/more aggressively. I wonder if that’s similar? Just curious.
That’s a good question-it is possible that being in ketosis would make DKA happen faster in the absence of insulin for a long enough time. That’s one reason I’m not on a pump! In terms of pregnancy that’s not an area I know a lot about but I’ve heard that diabetes or no, the keto diet is generally not recommended during pregnancy. In my experience I’ve found that extreme highs don’t really happen as much but I’m very aggressive in monitoring highs for just that reason (DKA)
Thanks, Steve! I just did MDI for three days (pump failure out of the country) and I couldn’t wait to get back on my pump. Everyone’s has their thing. 🙂 Glad you found a happy way to manage your T1D!
Hey guys! I know I’m a date late and a dollar short but I wanted to chime in for future readers. I started keto May 5. My ketones were just tracing on ketostix and then WHAM! On May 31, I had a bad infusion site and my BS jumped to 385! It took 84 units of humalog throughout the day to finally get it down. My daily average is 30-40 units. I felt horrible, like extra horrible so I decided to test my ketones (really just to see all that purple!) and low and behold my ketones measurements were through the roof! 150 mg/dl. Before I started keto, I would occasionally have BS’s that high but never felt so bad I had to test for ketones (yes, I probably should have but…you know when you have them and when you dont if you’ve ever been in DKA before). So my experience is yes, it can put you in to DKA quicker if you have an insulin mishap. Just my 2 cents. I hope this doesn’t deter anyone! TEST TEST TEST! Once I got my BS down that everything went back to normal and ketones went to trace. 🙂 Good luck!!
Hi Jessica, Thanks for sharing this experience! Just curious, had you reduced your basal/bolus insulin along the way prior to the bad site? I am trying to ascertain if there was less insulin on board to begin with that may have contributed to the DKA? I’m trying to figure out if the tracing ketones could have made that big of a contribution-like if 145 mg/dl would have been significantly different? I have also had a few highs (200s) since being on Keto and I have also noticed that I feel worse with highs on Keto-but I have found that is tied more to hydration/electrolyte depletion. To be fair though, I’m not on a pump so I don’t have experience with bad sites, so my highs are always mitigated by having at least a decent amount of basal on board and I think that could make a difference. I am interested to hear that this experience hasn’t put you off keto-but it seems like you’re still sticking with it? I’d love to hear more!
Hey Steve, what electrolyte drink do you use? Powerade Zero tastes good but I’ve been worried about the Splenda and having too much of it.
I use a powder called “Ultima” replenisher on Amazon. I haven’t tried all the flavors but so far I like the less citrus-y ones because they don’t give me heartburn as badly. I also drink pickle juice and it works really well too!
Hi! I have a question for you..have you found that you need to ‘count’ your data? Yesterday o was having a slow rise over the day, never over 180, but rose from 120 over the day.. I was still giving myself insulin for what carbs I counted during the meal but it was only 1-2 units…and still rose
Does that sound like it is too much protein at play? I didn’t feel like I ate that much protirn, but maybe my lens is skewed.
2.5eggs for breakfast, couple chunks of sausage/cheese/mushrooms, milk in the coffee
1.5 chicken breasts with 3 strips of bacon
Broccoli with 10-12oz steak and some cheese
From what you see here does this look like too much protien to put me into ketosis?
Also did you cut out the diet soda as a health choice or because it was an interference with the ketosis
Thanks for letting me stand on your shoulders of experience, really appreciate it 🙂
Serei
Hi Serei,
I’ve definitely found that counting fat intake or measuring it can help get the right proportions. The scenario you’re describing definitely sounds like protein is the culprit. Also coffee can have that upward BG creeping effect too! I don’t know that this meal plan would keep you out of ketosis all together but it might keep you from getting in deep enough to really feel the benefits. More fat and more electrolytes are what I go for in these situations and it helps eliminate the gradual rise. On a climbing day I’ll eat more protein because my activity will help smooth out the rise.
The count your data, was an auto correct to count your fat, like give insulin for how much fat you consumed
Hi Steve,
I am curious why you specify that you only consume “grass-fed, organic, and minimally processed” animal fats, but then suggest eating deli meat from the grocery store. It is common knowledge that deli meat is nothing but processed garbage with tons of additives and chemicals.
Hi Sonya,
While I respect your opinion about deli meats, I also won’t concede that your perspective constitutes common knowledge. There are a couple points relevant to your question: I’m hesitant to increase animal fats if they aren’t grass fed etc-and I’m not typically using deli meat for fat sources or consuming it in bulk. Most deli meat I use is predominately protein and adds a nice filler to soups or it can be a snack. The majority of the fats I consume are nuts, seeds fish and coconut oil when I’m on a climbing day and going to be pushing my body harder. I understand that incorporating deli meat anywhere into my hierarchy might be hard to accept, but it’s an affordable low carb food source. In an ideal scenario, the higher quality the better-of all food sources-but I focus on fats in terms of spending more resources there since that’s the bulk of my calories. If I had more money to spend I might eat more animal fats but macadamia nuts are cheaper at a higher quality.
Lastly I think it’s important to consider the bigger picture of what this article is about. It’s not about perfecting a diet to ensure that everyone is happy. It’s about a strategy to shift away from a carb heavy diet. Everyone is free to optimize that as they wish-and as you might imagine, I’ve been making changes all along the way too. The bottom line is that if a person with T1D is attempting to follow this type of diet, the trade off of eating a bit of deli meat while enjoying BG stability and high energy…seems like a reasonable starting point at least.
Just starting on this to get a1c under control. I am on pump and exercise can seriously lower sugar. I am wondering how one finds appropriate way to lower basal rate on pump for this diet. I already had a 53 today with basically no activity. Thanks guys
Hi Billy,
The topic of adjusting basal insulin or basal rates is a super important one-and the way in which that occurs varies greatly from person to person. I don’t think that most doctors can answer that question other than to give some basic guidelines to avoid emergency situations. I am not a pumper but I will share what I do. Perhaps someone else may be able to add to this.
I approach changing my basal insulin the same way regardless if it is diet or exercise or stress affecting my blood sugar. The more attuned to my BG I have become (especially in the last year with the CGM) I find that I am changing my basal dosage quite often and for a variety of reasons.
When I am in an experimental phase I will almost never reduce or increase my basal by more than about 10% per day. This is increment that I’ve found to be right for me, this isn’t universal! Trial and error is how I learned this-and gradually increasing and decreasing my basal allows me to settle into a sweet spot without worrying about overshooting and creating a dangerous situation that I can’t mitigate. I’ve certainly done the overshoot and had some big highs and lows-and so now I deal with being a little high for longer as I gradually ramp my basal down and vice versa if I’m ramping up.
One other thing to consider (not knowing how you’re breaking down the percentages of fat/carb/protein) is adding a bit more protein in since that usually produces a sustained and gradual elevation of the BG that could help to bring up your “baseline” if that’s the issue. If you’re experiencing crashing lows with precipitous drops then it’s likely going to be necessary to trim back the basal.
My experience was coming from a relative low carb diet to start, so I didn’t have to cut back my basal by a lot. If you’re coming from a higher carb diet it may be a more drastic shift than I encountered, dosage wise.
I hope this helps-good luck and keep us posted!
Super excited to have found your vlog. I’m type 1 and looking at my nutrition for endurance. My fiancé is a climber & I’m in yoga teacher training. I watched this video & this totally resonates with me: the science. I am so impressed with what you ate on the long climb, your blood sugars, and the recovery! Thanks for sharing! Very inspirational. I am a registered nurse and have been type 1 for 25 years and have never heard of this before. Even had I not heard, “ketogenic diet,” you’d think I’d heard the science and what the ADA “teaches us.” I’m also working on a certification in Holistic Nutrition so I can’t wait to put this into action. Thanks again!
Thanks Andrea! I’m actually in the process of writing a book about all this stuff-if you subscribe to my email list and the vlog you’ll be kept well up to date! It’s all very exciting for me too; I still haven’t found the ceiling on this!
I’m a 68 year old type 1 diabetic from the age of 5. I just recently started taking the KetoCaNa daily and have been amazed at how my BG has improved! I limit carbs but don’t do the diet referred to here. Do I need to be concerned about electrolytes?
I’ve never heard of the KetoCaNa diet. I’d love to hear more. In terms of electrolytes, I feel much better if I am consistently replenishing them and hydrating. If you’re in ketosis for extended periods it’s pretty essential to being able to sustain that-in fact most people who have bad reactions to a keto diet usually bonk because they fail to replenish electrolytes and hydrate sufficiently.
Hi there. I think I’ve devoured everything on the web about LCHF and T1 diabetics this week. My 12 year old was just diagnosed this week with T2 (so they think, anti bodies still out, but he “fits” the profile they say). I’m devastated. I know that the dietitian was dead wrong, essentially telling him he could eat how he wanted but just supplement with insulin. It just seemed like they assumed he’d never have a normal life of blood sugars so just make him “comfortable” to cover their butts. He is still producing some insulin, so they prescribed him 3 units of basal insulin at night. His daily bg is between 80-130 (same without insulin and on lchf). I’m terrified of hypos in the middle of the night, however. I wish I had a supportive doctor in our corner. The “experts” basically mocked me and treated me like a child abuser because I balked at their recommended 80 grams of carbs per meal. “Kids need it to thrive” they said.
I’m keeping him hydrated and watching his levels/ketones. Do you have any other suggestions for my little one? I’m scared.
**Correction: my son was diagnosed with TYPE ONE, not T2. Sorry about that!
Hi Diane, the topic of kids and ketosis is certainly one that is laden with controversy. I have no experience with it-but I can suggest the method that I use to manage risk basically everywhere else. Proceed with caution, test often and go slowly. If it works for you, don’t stop. If it stops working, don’t go down with the ship. In terms of lows, one of the biggest advantages of low carb eating is using less insulin. Less insulin means less fluctuation and easier mitigation of lows when they do occur. The first year or two are the hardest because there will be a lot of changes. I will point out that there is some (inconclusive) research that suggests that what you are doing may actually prolong his bodies ability to keep producing insulin for a long time to come. Most people don’t discover this way of eating for a long time because they don’t learn of it at diagnosis-just based on similar experiences to what you’re relating. If the body can’t produce as much insulin, matching carb intake to the bodies natural production can allow it to continue producing-if you take in greater numbers of carbs that definitively require exogenous insulin, the bodies already minimal effort will diminish-similar to the way that steroids cause the bodies natural production of testosterone to diminish. That’s the theory anyhow. Some people will definitely disparage your efforts to keep your child low carb. I’d love to hear more about this-and possibly if you’d be open to writing a guest post about this? It’s incredibly important to me-thinking that there is a way to help so many people simply by changing diet-but this is beyond my experience and your experience could help others a lot!
Also…I am going to be creating a series on my YouTube channel this week about the keto diet and troubleshooting it etc. You may be interested in subscribing and checking it out- Youtube.com/livingvertical
Hi Steve. Thanks for your thoughtful reply. As I’m sure you know, it is great having someone understand where you’re coming from!
I agree with you about proceeding with caution. We have kept slow acting carbs and some berries in his diet (mostly because he has gone through such a huge change so fast), but otherwise the low carb/high fat is working to stabilize him. I know nothing about insulin, I am assuming 3 units of lantus isn’t much at night and he doesn’t seem to be dropping like crazy, and we have checked him in the night to make sure he’s ok. He’s not experienced anything like a hypo yet….but of course I am super paranoid. His ketones are solidly moderate now, but he has low bg so that isn’t worrying me too much. I make him hydrate and go run for a bit and the bg drops and ketones lighten. Seems to be working for us, but I am definitely taking it seriously.
The near future worries me. There is still that part of me which thinks this is a fluke and he’ll be just fine, but I’m preparing myself for the worst. They say this is the honeymoon and he shouldn’t be keeping these low numbers for long. How positive! 🙁 I can’t see any other rational approach to this than lchf, though. The ADA alternative is madness and I refuse to open that door. If he indeed is T1, I will do all I can to help him preserve enough function that when he’s a young adult they might have a cure! One can hope, at least!
As for food, I burned myself out last week trying all these recipes when what I really needed to do was simplify everything. I am stripping down everything and reintroducing things very slowly. I’m stocking up on high quality, simple, KNOWN products which satiate and there isn’t a carb guessing game. We are all participating in this way of eating, as well. It’s been amazing to see my kids not ravenous, snacking on anything they can get their hands on and just being satisfied between meals. Seems like the way it should be, or once was.
As far as writing goes, I once wrote for a couple of blogs so I’ve thought about getting back into it. 🙂 I would love to write a guest post, but I do want to wait for his anti bodies test results and get another week/two under my belt if that’s ok? I’m so green and still in shock, to be honest.
I’ll check out the YouTube channel. Thanks again for the advice!
Thanks for getting back to me Diane that sounds great. It sounds to me like your approach is basically ideal (in terms of what I would advocate given my experience and dietary perspectives!). I know it’s hard not to worry but if it helps, there is no one out there who is in a better position or doing a better job than you. It’s hard but you can (are) do (doing) it! Take all the time you need-feel free to stay in touch via direct email [email protected]
Hi Steve,
I’m wondering about ketosis and treating hypos (couldn’t find anything but sorry if someone has already asked this!). Firstly, is there an objective way to know that I am in ketosis, is it just a matter of ketostix? And secondly, if I have to treat a hypo, would that be enough to shift me out of ketosis? If so, how much does it take for this to happen, and are there consequences for going in and out of it?
Thanks in advance!
Danielle
Hi Danielle! I actually just made a video and blog about this very topic which answers these questions. They can be found here: http://livingvertical.org/2016/07/17/ketogenic-diet-hypoglycemia/
In terms of knowing if you’re in ketosis, ketostix aren’t great-but they give some idea of ketone production. A blood ketone meter is much more reliable. I
have always been pretty happy going by feel and blood glucose and energy levels. Once you’re in, you’ll know it. That’s been my experience!
Thanks so much Steve!
Hello Steve!
Until today i NEVER knew there was a difference between a “low carb” diet and a “ketogenic” diet!!! WOW what a huge difference! Especially for a T1 like myself! (48/F On an insulin pump also using a CGM.)
I intend on doing more reading on your blogs and research about this because last year i ended up in 2 diabetic comas (bs was 17 by the time EMS got to me both times) and also hospitalized for DKA at least 5 times…all because of my own ignorance and no reasearch about being in ketosis. I did EVERYTHING wrong!!! And today i was getting ready to start it all over again just to get more weight off because its the only thing that works…but NOW i am soooo glad i found you and i am going to hopefully be able to avoid thOSE DREADFUL hospital visits this time!!!! Lol The one and only thing i did wrong was eat too much PROTEIN! In fact…thats ALL i ate last time! So, everytime i ended up in DKA and extremely dehydrated. And i just kept doing it again and again! How hard that was on my body!!. I thank God i even survived last year! Thank you for your guidance and knowledge! I’m so excited to start this journey again and do it the right way!
Missy
Wow! I am glad to hear that you are still willing to experiment despite the challenges of this journey! I hope that the resources here can at least get you started. Please keep me posted on how this goes and if you have questions, I am available to offer my experience. I always advocate for gradual and slowly-and not combining multiple variables. The goal (as I’m sure you know) is sustainability and that often takes a lot of trial and error to reach!
Dear Dr. Peter Attia,
My Grand-daughter (13 yrs old) has type 1 diabetes, and still in her honeymoon phase. Would like your thoughts on getting her into LCHF diet to reduce stress on her pancreas, and maybe making her life more normal.
She has doctor here in Anchorage who would work with another knowledgeable doctor - I believe.
One thing, she is very very thin, as went into coma from starving before discovered that she was type 1 diabetic.
Please respond if you can assist or you know someone who can. We are happy to take her to any doctor anywhere for help.
Alan
Hi Alan,
This site has NO affiliation with Dr Attia whatsoever and he has never visited here (I’m about 99.99% sure). I would recommend reaching out to the Type1 Grit group on Facebook for opinions and recommendations. They can be a little bit “much” at times but you may find some useful information there.
[…] The ketogenic diet and type 1 diabetes: what I eat – I recently began writing about my journey with food as I attempted to optimize my type 1 diabetes management in relationship to athletic performance. This podcast episode can provide some additional perspective about how I arrived … […]
Hello out there. Skip here diabetic for 34 years, 46 years old and just starting ketogenic diet. 2 weeks in and loving it. BG staying 80 - 120 with very few highs or lows. two questions. I’m a pump wearer, and wondering (aside from turning down the basal rate) how to avoid lows during or after exercise. seems that without carbs onboard you’re burning dietary fat instead of carbs and there wouldn’t be as great a risk for lows with exercise. Ive had 4 day stretches with perfect BG which has NEVER happened in 34 years!!! Also I’m 6′ 2″ and weighed in at 172 when starting and have lost a few pounds although I eat tons of food now. Any advise on how to maintain weight? Thanks for the great posts.
Hi Skip!
Great to hear from you! I am SO excited to hear of your progress with BGs due to eating keto. It’s amazing when you finally discover a big “win”. I am still working out the kinks out of the keto-exercise-t1d equation but like you theorize, I’ve found that fewer lows is part of the benefit of Keto. As far as maintaining weight, I have found that more or less calories and activity won’t impact my body weight by more than 2-5 pounds. I believe that less insulin combined with BG stability are responsible for this. I have heard of people who lose a LOT of weight and then stabilize once they reach optimal body weight without micro managing calories. I believe that the type of calorie makes a big difference in the way the body processes it-see “Good Calories-Bad Calories” by Gary Taubes-great reading on the topic (non t1d of course but very interesting!)
Thanks for your reply steve. I’m encouraged for sure but am experiencing a few side effects that I hope either go away or can be counteracted. most notably heart flutters which I assume are from lack of electrolytes. I’m packing in the greens and Kale, taking a one a day vitamin as well as an electrolyte supplement. Does anyone have any perspective or advise on how to alleviate this symptom? It’s pretty constant. Also, I’m running a small amount of ketones in my urine which I know is predictable. Any perspectives on that as well? My endo will likely freak out a bit about this. I’m hoping this level isnt harmful to t1d folks long term on the keto diet. Thanks again for the honest posts.
Hi Skip,
I would recommend a magnesium supplement and potassium supplement. I take 200mg of each daily in addition to an electrolyte drink and the greens etc. It has improved things for me a great deal. Heart flutters are something I haven’t experienced with regularity on keto-did it start out of the blue on keto or has it been on your radar and just flared up on keto? What is your caffeine and sleep like-and possible culprits there? I certainly can’t give you answers on this but I might be able to help ask some questions that would be useful! It could be helpful to ask your doc about the heart flutter-that may be a separate issue entirely too just manifesting in the presence of lower electrolytes.
As far as ketones in the urine, I believe that is normal. There is no research that I know of that has studied the effects of ketones over a long term when they are not a result of DKA (which is obviously bad!). I focus on the variables I know and can qualify-my blood sugar, energy and general “feeling”. I don’t know what non DKA ketones do over 20 years-but I know that high blood sugars do over 20 years so if there has to be a trade off, I’ll manage the risk I know the most about. I suspect that most endos would be curious, cautious but pleased with the benefits to BG stability and control.
Thanks for the reply. I started making my own “sports drink” with dissolved potassium. seems to have helped greatly. Blood sugars are amazingly controlled and I’m not going hungry. I’ll have blood work done Oct 11 and I’m curious to see all the numbers. My only real concern is still weight loss. I eat a LOT and I’m getting plenty of calories. The only exercise I get is walking 2-4 miles most days and a little light body-weight exercises 3 times a week. Do you know of a way to actually put a few pounds on while eating keto?
Hi Skip! I have been working on a modified keto diet that cuts saturated fats in favor of unsaturated fats-ill blog about that soon! It’s been going ok but I felt a little better on more coconut oil-or maybe it was just easier getting the full fat doses with coconut oil since it’s semi solid? Who knows…In terms of weight loss, I have another friend who is dealing with the same thing! I suggested that he shift more of his calories to protein but it’s still too early to tell. I think heavier resistance exercises might help too. I’m going to be starting a gym workout again soon to train for El Capitan and that will give me a chance to test the bulking with keto! A couple resources you might want to check out-Tim Ferriss show (podcast) JUST put out an episode that deals a bit with this-it’s an episode with Dom D’Agostino. Also check out the Keto Gainz reddit-it’s all about cultivating mass on keto-certainly not from a t1 perspective but there’s bound to be a lot of others who have a similar metabolism.
Steve thanks for providing this blog. I am a type 1 diabetic that was diagnosed at 18 and I am 33 years old now. I started the ketogenic lifestyle October 18th 2016 and it has been great for my blood sugars as they have not spiked above 200 at all and I have lost about 10 pounds. Do you use the pump or take insulin shots and also how do you handle eating out with friends as that is a challenge for me? Given your active lifestyle, do you experience any low blood sugars and if you do and how do you bring them back up? Thanks my friend.
Hi Alfonso! Thanks for writing-I am on injections-tresiba and humalog. Eating out for me usually involves some sort of breakfast (eggs) with a side of butter. Just get rid of hash browns and toast. Dinners are steaks, wings or salads. Anything else is usually just wings because I love wings! Adding some butter to just about anything will fill you up and not cost extra. As far as handling lows, I have a blog about that (just search here) or watch my youtube playlist (https://www.youtube.com/playlist?list=PLH7S7KFt6dZwnjaiZFDM8N1k1kh664iLm) about the keto diet and I address that question in depth there. Thank you!
[…] Richert has Type 1 Diabetes and his September 1, 2015 blog The Ketogenic Diet and Type 1 Diabetes: What I Eat. He gave it the good old college try and has fearlessly came back and showed us all his results. […]
I have been on the keto diet for about a month (T1 diabetic). I am still very early on of course in this process but I was wondering if you or others have noticed something. I have lost sensitivity to “knowing” when my sugars are dropping on keto. I have had a few low numbers that normally I would have felt terrible, and I still felt pretty good. I know I need to continue to test regularly, but I was wondering if this lost of sensitivity is either that the changes are now much slower, or if it is because my body doesn’t see glucose as a primary energy source so I continue to function relatively well even when the BG is dropping? Thanks, just interested in other T1 experiences.
Hi Greg-thanks for writing in. I have experienced what you’re talking about and I think your hypotheses are in line with my suspicions and experiences. Your body interacts differently with glucose and what we “feel” as lows are usually more related to the rapid descent of the BG rather than the absolute value of the measurement. Also, it’s hard to speak to what “low” is-I know some people who will treat for a low at 80 or 85 and usually run a lot higher. If you normalize your blood sugar, 80 or 85 become middle of the range rather than low-and your body stops responding abnormally to a “normal” blood sugar. Part of the problem in the diabetes community is that there is a narrative of it being impossible to achieve normal blood sugars and we are encouraged to run high and embrace the roller coaster. Normal bg are achievable in many cases-and if there is a greater awareness that this can happen, more people would be encouraged to keep experimenting rather than embracing the false narrative of victimhood until a cure comes about.
Steve,
I was wondering that since you are on the Keto Diet, how many units of short acting and long acting insulin do you take a day?
Hi Alfonso-
I’m sorry I missed this-I currently take 0 to 1 unit of rapid daily-16 of tresiba once daily. When I eat more protein I sometimes will take up to 2 units a day but that’s not very common.
Interesting . Prior to starting the lchf diet in September I experience dramatic loses and Highs. Prior to this diet I lost the ability to feel lows and could only regain that sensitivity after preventing lows for a few weeks (staying in high BGs). These days I’m quite comfortable in the 70s and stills don’t always feel lows but i do notice that it takes much less to raise my BG a small amount back to the 90s or so. Also I’ve grown accustomed to hanging out in the normal range and now even BGs in the 130s or 140s feel like the 200s used to. This really helps me cue into rising BGs and I can adjust. As a type one I strongly believe that knowing your BG is the most important tool aside from diet in staying healthy and I can’t always depend on my feelings to be an accurate measure of BG. I wear a cgm and wouldn’t take anything for it. Just a personal note. Best wishes!!
Hi Steve!
I am a type one diabetic for 38 years. I have been struggling the last couple of months with losing weight. I have been doing some research about Ketogenic Diets and all this information provided here has been helpful. I have two questions. Are any of these drInks that put you into ketosis necessary? I have read about Keto OS, it states it puts you into ketosis quicker. My second question is about portion sizes. Is it necessary to weigh protein? Is a 4-6 oz serving too much? I am someone who has weighed food and stayed away from high fats for so long. I am having issues with eating more healthy fats.
Thank you!
Debbie
Hi Debbie,
Great to hear from you! I would not say that the keto drinks are entirely necessary. They can help enhance ketosis if you’re getting ready to do some sort of athletic event but I have never used them personally and still experience a lot of gains using “normal” methods. Some people like the drinks-I may try them eventually but I am always suspicious of marketing gimmicks in diet. If it can’t be done naturally, more or less, then I’m unlikely to get way into it.
As far as protein and fat distribution in your diet-these are two of the three biggest problems that people experience on the keto diet. Too much protein, not enough fat. Ideally about 70-75% of your calories should be fat. That means that you have to add direct fats (coconut oil, grass fed butter for example) in substantial quantities. 4-6 ounces of protein sounds reasonable-but be careful of eating a lot of high protein foods to get fat (IE, trying to hit your fat requirements through eating fatty steaks; the amount of steak you’ll eat will throw off your ratios by adding in too much protein).
Also, I would recommend only eating when you feel hungry. Personally I can’t do 3 meals a day. I do 2 max or else I am way too bloated and my BGs go high. To answer your question though, I don’t weigh my protein. I would eyeball it as close as possible and track the percentage of your macros. Try keeping record for one or two weeks and log each thing you eat and break down how much is fat, protein and carb etc. That will give you more useful information than weighing your protein.
In terms of weight-loss, once you’re comfortable in ketosis, adjusted and adapted, then look at maintaining the same 75-25 macro balance while reducing calories over all. Ketosis is not equivalent to weight-loss. It’s one method that can result in weight-loss if done properly. Adapting is primary, then optimizing (weight-loss, athletics, blood sugar) are secondary. I hope this helps.
So excited to read this. I’m a type 1 with insulin pump and CGM and have been on keto for the last 3 months. Have last 21lbs, dropped A1C from 8.1 to 7.7 and have reduced insulin boluses:) went to endocrinologist last week and they say this is not the diet for type 1. They say i am at high risk for DKA. I just don’t get it! I have a continuous monitor so know my sugars are so good! I feel great!!! I think I would know if I’m going into DKA? They want me to eat 100gm of carbs a day:/ I’m going to keep on doing what I’m doing and going to try to prove to them this works!!! But have been trying to find info to take to my next appt? My doctor says she can’t find any research about type 1 and keto but says it is not good to have ketones in your urine. Anyways I was so disappointed after I left my appointment. They were so negative!!! Thanks for sharing your progress!!!
Hi Samantha!
Great work on bringing your BGs down and dropping weight! That is a huge improvement-and not an accident. The medical establishment has a lot of doctors who don’t fully understand the difference between DKA and ketosis. A few minutes of google searching would clear that up, but they have been given guidelines to follow. I don’t hold it against them but it irritates me when I see people who are experiencing tangible and significant improvements in their health being told to stop doing what works. I can say with certainty that if I followed the advice of my first endocrinologist (very highly regarded in professional circles) I would have complications and I would not enjoy the health that I do today. I simply chose to do what works for me because I have moment to moment experience, not dogmatic guidelines.
Here’s the basic ideas to be aware of-ketosis occurs when the body uses ketones for fuel and the liver produces them at a very low level relative to DKA which occurs at 20x the ketone level of nutritional ketosis. The governing factor of DKA is the absence of insulin which suppresses and excess of ketone production. Basically, as long as you have insulin titrating at the appropriate level for you, nutritional ketosis alone CANNOT put you into DKA. If you get a bad pump site or run out of insulin DKA is possible but at most 1/20th of the total ketones contributing to that DKA would be from the coconut oil you ate in your coffee (if you do bulletproof?). Ketones are not harmful in themselves in the same way that sugar in your blood is not harmful. It is the massive excess with no counter-regulatory hormone that is a problem (DKA).
So in short, something you already know to be dangerous: running out of insulin-is still dangerous. The tradeoff is the obvious improvement in energy and BG control.
I am not a doctor and all of what I am saying is from my own experience which is anecdotal. I encourage others to do their own research and see what works. Do what works for YOU. Then, find a doctor who will support that and will do the research to get up to speed along with you. Those doctors are out there. I am thankful to have an endo who has started doing research after seeing me and while he has lots of questions and doesn’t have all the in depth studies-he trusts me and trusts the data he sees from my BGs.
I’ve been reading the comments and haven’t seen this addressed yet, so I’ll go ahead and ask (forgive me if I’ve overlooked the answer!). I’m type 1 and am planning to switch to a keto diet. I’m wondering what happens if I go low and have to take in carbs via glucose. Will I be kicked out of the keto state and have to start again?
This is a video playlist I made on YouTube and it has all the answers to my Keto experiment-including lows and carbs vs Ketosis
Hi Steve, my daughter is type 1 diabetic and is really interested in starting this diet. But she is very worried about DKA, she wants to know if for example she were to go to the movies with friends and decided to have some popcorn or anything of the sort. Or if she eats something she though was okay to have but wasn’t. Would she be able to eat things like that without worrying about going into DKA?
As long as she gives her insulin she should be okay, correct?
Thanks, Carmen
DKA is always a concern, keto diet or no. Insulin is a ketone suppressant and the biggest risks of DKA occur not simply from high BGs. In most cases you’re correct. However, a few caveats; if she’s on a pump, mechanical failures/occlusions can be more of a risk because in those cases insulin will not be present to suppress ketone production from potentially going over the top. There are plenty of T1Ds on keto with a pump but it’s something to be vigilant about. I’m on injections and so even if my sugar is high occasionally, I know that I definitely still have insulin in my system. A bad pump site at night, waking up at 450 etc-that can be a higher risk for DKA on a keto diet.
The other thing is that this way of eating (keto) is very restrictive and requires a lot of discipline. That effort does yield a lot of freedom so for me and others it’s worth it, but no shortcuts is the key. One option if she is looking into it for the first time would be to simply go low carb without trying to fully become fat-adapted. One can get 80% of the benefit with only 20% of the effort and that’s what I usually recommend now to people who are just trying it for the first time or may have competing priorities in their life. Simply knocking carbs down to 50-75g daily and dosing accordingly might be a good start.
Hi Carmen,
I did four days of a fasting-mimicking keto diet, and while overall it worked very well and I had incredibly stable blood sugars, there are a few things I learned. The primary one is that you can go into ketoacidosis (which is very different from ketosis) without having high blood sugar. The medical term for it is euglycemic ketoacidosis. My blood sugar was at 90 but I was spilling large ketones and I could feel that I was in DKA ( a very distinct, highly unpleasant state). It occurred because I was already in ketosis, went low and suspended my pump for an hour. The complete absence of insulin was enough to kick me into dangerous DKA. So lesson: never suspend basal rates completely! I had to break the fast to get out of it by delivering small amounts of glucose followed by small amounts of insulin.
The other thing I learned is that it’s relatively easy to get into ketosis, and also relatively easy to fall out of it. I don’t know if it’s because I’m Type 1, or if it’s this easy for everyone, but I had 20 carbs for one meal and within 12 hours I was no longer in ketosis. The keto diet is very restrictive and apparently very precise, with little leeway. So it’s an undertaking.