You can call me diabetic if that’s what works for you. I won’t call the language police to shut down communications. Silence doesn’t help those of us living with this condition and it doesn’t help the outside world deal more gracefully with admittedly difficult subject matter.
I’m not saying that words don’t matter. Words do matter-not because of an inherent value in the words themselves but because of the context. Words matter because of how we interact with them. Trying to protect ourselves from terms themselves is asking the wrong question. Leaning into the effort of influencing context and controlling the narrative is proactive. It’s something for which we can take responsibility. We can change what words mean through action. That starts with taking ownership in our own life. The point of this exercise is to change our perspective. The benefit to us is a better life, independent of the willfully ignorant.
Scrutinizing semantics shifts the focus outside of the things we control. Asking how we can break underlying ignorance seems closer to the mark. Person with diabetes, climber, diabetic, diabetic climber-are all accurate. None of those words makes me who I am. They don’t define me-I define them. Doing that work is something I own-it’s not something I’m willing to outsource. The heart of being successful with this disease involves questioning everything and being independent enough to formulate your own rules based on what works for you, not playing by rules handed down from internet authority figures or arcane medical tropes.
I’m aware that I’m asking you to freely reject my position as part of my platform. I’m no authority figure. I’m just one person. I’ll choose to define the value of diabetes for myself, thank you. That includes all the words and the nomenclature that comes with it. It’s my disease and I’ll paint it any color I want.

It’s interesting that for the same exact reasons you state, I’ve removed the word “diabetic” from my personal vocabulary. Like you, I don’t take any offense when I hear the word…but I’ve been told by some that the word does cause them discomfort.
So I’ve concluded that in my personal (and professional) advocacy work it makes the most sense to not use a term that may make people focus on semantics instead of the actual content of the messages.
Same reasoning. Absolute different conclusion.
Hope you’re well, brother.
Hey Mike! Great to hear from you! That is interesting-and I tend not to refer to others as diabetic but it’s been a bit of a process to feel comfortable saying “I’m diabetic” around others because I was afraid that my willingness to use that term about myself would offend them. It’s a tricky process. Plus, honestly, I just love stirring the pot and challenging what seems to be accepted 🙂
I think the takeaway IS the reasoning-because it’s important that we have different conclusions!
I’m hanging in there-I hope you are too!
I love linguistics. Particularly, I love social linguistics. My senior thesis was on three words used to demean certain minority groups, that are now being reclaimed by those respective minority groups. In short, it was about what power a word can have when using it to label a group, and who has the power in that dynamic, and how that power can change. Because of this background, I think the term we are called is important and worthy of being examined… but not worthy of having a hissy fit over. 🙂
My T1 dad says he is a person with diabetes, and he raised me to say that, too (knowing I might get T1 eventually). My dad also is the type of “person with diabetes” that is constantly seeking, hunting for a cure, watching the trials and journals, etc. He has a lot of hope that one day, he wont be a person with diabetes (okay, as he gets older that hope is more focused on “one day my daughter wont be a person with diabetes”).
I did, but I’m very obstinately a diabetic. My entire life has been dominated and controlled by diabetes, even though I was diagnosed as an adult. My experience, due to me having diabetes, is very different from a non-diabetic’s life experience. A non-diabetic can empathize, but cannot truly understand my experience. This makes me different and sets me apart and I acknowledge that. There is a different culture, different jargon, that comes along with joining the “tribe of diabetes.” I am different. I am not like you. You cannot tell me how to be a diabetic. You have no right to tell me to… drink asparagus juice or run more. You are in a different tribe. I am in this tribe, this culture.
Additionally, I am not a person that lusts after a cure. I am the opposite of my dad. He will email me an article about the latest trial and latest artificial pancreas, I role my eyes. In fact, that’s the first thing I did when diagnosed. My endo, who is also my dad’s endo, broke the news and said the line, “There will be a cure in 5 to 10 years.” The look I gave him could kill.
There are “people with autism” and need to be cured. And there are Autistics who need to be respected for their unique beauty.
There are “people with diabetes” who seek for a cure. And there are diabetics, like me, who grew up in a diabetic household, who have family celebratory dinners when out-of-pocket max is met, and force their non-diabetic daughters to get a finger prick every few months. I grew up differently. My body is different. This isn’t a cold that comes in and goes away, this is a chronic issue.
I am not a person with diabetes, because I do not exist like a normal person does. A person with a cold has a “baseline” existence as a normal every day person. I don’t have that. My baseline situation is not of the stereotypical situation of a “person” (taken in the context of the culture they’re spoken of). I’m something else.
Wow…this is AWESOME! Can I share this with my email list? This is so…so right on and well thought out. I love it!!!
Hi, Steve. I am a diabetic diagnoses 8 years ago. I am 39 now and I also write a blog called Insulina Portatil (that means portable insuline). I try to share some of my experience living with this disease and showing that life does not end after we hear the doctor saying ‘type one diabetes’.
I really like what your post and also believe we are the ones who give the words their real meaning.
Thanks a lot for sharing!